Showing posts with label diabetes power. Show all posts
Showing posts with label diabetes power. Show all posts

Saturday, 30 July 2011

Today's run is dedicated to Ryan Welton

Well, the half-way mark is here.  I'm going to enjoy today's run because:
1) I'm heading out around 11:30, and there was no getting up at silly o'clock today - it is a Saturday, after all...and the sun is shining so to be running on the fells looking out over cattleshaw is going to be great.
2) It's good to have 50% of the challenge under my belt, and I can start counting down until the Great North Run.
3) I'm feeling the benefits of the daily 10K's - Running further distances, motivated to do more, and enjoying work during challenging times.  I've lost a few pounds too, which needed to happen.
4) Carolyn has booked me in for a sports massage this afternoon, and everyone I know has been full of support, encouraging me and donating to the charity.
5) That today's run is going to be dedicated to Sarah Brown's son Ryan.  Sarah works with me, although she is based in Southend and we have yet to meet up in person she's been a great support ever since Jake was diagnosed with T1.  Sarah does a lot of campaigning and has introduced me to other areas of support such as Diabetes Power.  Thanks Sarah for all your advice and I'm hoping to be in Southend soon so I can thank you in person.  I'm proud to dedicate my 50th run to your son Ryan.




Sarah tell's Ryan's story:
"I will never forget the day those three words ‘Type 1 Diabetes’ entered our lives.  It was August 2008, the height of summer, when my son, Ryan, fell ill.  He had seemed to be the picture of health albeit drinking more than normal but only to be expected with hot summer days spent on the beach. He liked to sleep during the day, but what teenager doesn’t? Mood swings were common, just teenage traits surely? It wasn’t until he fell extremely sick with vomiting and extreme weakness that we took him to see the doctor who immediately admitted him to hospital as an emergency after doing a simple urine test.  The rest was just a blur.....  ketoacidosis.... type 1 diabetes.... blood tests...... needles.... insulin.....  It was simply the worst and most frightening day of our lives!
Since then Ryan has learned to cope with several daily finger prick tests and injecting himself with insulin and I feel as if I have become an expert of the condition after reading all the literature I possibly can! He has involved his friends, giving them knowledge on his condition so they can support him in his daily life.
Our latest challenge is obtaining an insulin pump for Ryan.  This will put an end to the several injections a day he has to endure and will mean he will have a pump attached to him with a constant delivery of insulin to keep his sugar levels at a more stable level.  We have to wait until the end of the year to see if he will be granted one but, as with many things, it is all down to funding and, at present, this is not available so we shall have to wait patiently..... or take our fight to the PCT for something that should be readily available to give Ryan a better quality of life. 
Since Ryan's diagnosis, I have built a large support network of friends on the internet, all of whom either have Type 1 Diabetes or are parents of a child with diabetes.  Without these people, I would have found it even harder to cope with the many ups and downs that looking after and supporting my son brings.
Tom only wanted a couple of paragraphs and I feel I have gone on quite long enough now but, when it comes to our lives with diabetes, I could truly talk for England!  I just want to say a huge 'thank you' to Tom for this incredible challenge he has taken on to help raise funds for vital research into, hopefully one day, finding the cure for Type 1 Diabetes and is a great honour that he is dedicating run number 50 to my dear son, Ryan."

Look out for the second blog post later with details of today's milestone run

Monday, 25 July 2011

Today's run is dedicated to Claudia Allison


It's time to say farewell to Liphook and head back north this morning, via Bedfordshire to pick up Carolyn.  We've had a good time away and it's been great catching up with my family, my sister, her partner and my niece, Grace.  Whilst I was down, I met up with some of my oldest mates in London on Saturday evening, they were full of encouragement and wanting to know all about the challenge.  I logged onto the Justgiving site yesterday to see that Nick and Tom have donated £120 which I'm most grateful for.  Along with Louise Bloxham's further donation (Finlay's Mum, run 40's dedication) this takes me to £930 so far - great stuff!

I'm dedicating today's run to Claudia Allison.  Claudia's Mum Allison emailed me last week:



"Claudia was diagnosed with T1 in May 2008, aged 7 years old.  Now 10, she has a pump and cgm.  Diabetes Power is the website I set up in order to raise awareness of Type 1, along with the "Know the Symptoms" Campaign."

Read Angela's JDRF 1 Campaign Scrapbook entry:



Thanks for your hard work, Angela and I'm proud to dedicate today's run to Claudia.

Yesterday's run - 7.1 miles
Today's run - 6.2 miles

Tuesday, 19 July 2011

Angela's Diabetes Power Website

Angela Allison is mum with 5 children, Claudia aged 10, has Type 1 Diabetes and Coeliacs Disease, Isabella aged 12 has Coeliacs Disease,Darcy aged 6, Felicity aged 4 has egg,strawberry & shellfish allergies and Purdey 2.
Claudia was diagnosed with Type 1 on the 1st May 2008.  Angela set up this group because her friends with Diabetes inspired her.  All members of the group either have Type 1 Diabetes or have a child with Type 1 Diabetes. The group welcome support from anyone who has Diabetes or who cares for someone with Diabetes.  The aim of the group is to raise awarness of Type 1 Diabetes, and is a not for profit organisation working towards charitable status.
It is only through raising awareness of Type 1, that we will educate and gain the understanding of the wider public & the health professionals, through this hopefully we will help people identify the condition at it's early stage.
http://www.diabetespower.org.uk/

Keep up the good work, Angela.

 

Saturday, 16 July 2011

Dedicating future runs

I mentioned in an earlier post the idea that Colin and Carolyn put to me around deicating a run to someone living with type 1.  Well, it's picked up some momentum this week.  First of all I was in contact with Sarah Brown, who is going to send details and a picture of her son Ryan for a dedication.  I contacted Jon Medcraft at JDRF to see if he could assist with finding anyone else who would like a dedication, and he has sent on four already, which is great.



I've pencilled in dates for these dedications, and hopefully can do a bit more to raise awareness of what it is like living with type-1, especially with young children and the challenges they face, their hopes and fears for the future.  Thanks to Sarah Brown, Louisa Bloxham, Angela Allison, Sabrina Dawe and Teresa Keywood.

Looking at the rain outside, I think flippers rather than trainers are best for today's run...

Saturday, 2 July 2011

Diabetes Power

I came into contact with Sarah Brown through work.  Sarah works in the Southend Centre and during a week of fundraising a couple of years ago, I noticed someone was raising funds for the JDRF.  I got in touch with Sarah, explained about Jake, and she told me her experience with her son Ryan, who also has type-1 Diabetes and is about to turn 18.

I'm grateful to Sarah who has shared some really useful tips over the months and has also undertaken some great promotion work, raising awareness of type 1 over the Facebook network.  Sarah has sent me details of the group http://www.diabetespower.org.uk/ who are doing a good job of raising awareness, especially around looking for the first signs of ketoacidosis, and 4 case studies of children who were diagnosed with type 1 between the ages of 3 and 15 years of age.

Their website provides good advice, website links and a 24 hour support telephone number.

Thanks to Sarah for sending this on, and for your support over the months - I'll be sure to pop over when i'm next in Southend.